The most important part of my work as a writer and truth teller is sharing my brother, Gavin’s, story. Although he was diagnosed with a rare terminal illness, Aicardi-Goutieres Syndrome (AGS), and in the beginning of his diagnosis, we thought the disease would tear our family apart — the opposite has been true. Instead of dismantling our family, he has brought us closer together. Closer than ever before. Gavin is our rock, our light, our purpose. We include him in everything, which I think is so important to not only his life — but also in ours. Although he cannot do many “normal” things, he has a rich life — full of love and adventure and memories.
I often keep his Facebook page updated, which you can follow along here: Follow Gavin on Facebook
And I am in the process of launching a community on Facebook, where sisters and brothers of sibling’s who are sick or require special needs, can follow along here: Sisters and Brothers on Facebook
I will be speaking about the important, yet often brushed over, sibling’s perspective on disability at the Abilities Conference in Los Angeles and New York in 2018. Dates are T.B.D.
To inquire about speaking gigs, please email me: miss.courtney.lund at gmail.com