The New York Times, My Brother, the Hospice Graduate


Glamour, I’m Pregnant and the Carrier of a Rare Disease—But That Doesn’t Change Anything


The Washington Post, Why I Cried When I Found Out I Was Having A Boy


Good Housekeeping, Gavin’s First Christmas Was Supposed To Be His Last. This Year Marks His Tenth.


The Mighty, When I Watched My Brother Take His First Steps With a Rare Condition


San Diego Magazine, Get Fit and Have Fun